How has it become June already?
We have the latest test results and it seems that much has been happening. I look back and wonder how I ever managed to work for a living. Of course the circumstances were different then but the days just seem to melt away before me.
My mom passed away in April after many years of physical and mental suffering. She contracted pneumonia and made her own choice to stop the antibiotics when they discovered they weren't working. She passed peacefully with no anguish. I think it was as graceful as it could be. My family all had the opportunity to spend time with her and to say goodbye. Death is never pretty but my immediate and my extended family loved on her until the moment she left us. I am proud of how well mom was taken care of by all of us. My nephews and nieces were exceptional.
We got the results from all the testing on May 10th. The Carcinoid cancer remained unaffected by the peptides so after 7 1/2 months we stopped the regimen. Mostly I want you to know that I am not disappointed. Given what Jeff and I know about Carcinoid we were fully aware going in we may have to try 8 or 10 alternative methods before we find a cure so this was simply the first. We do know it removed all of the precancerous spots from my face and hands and are betting on it having destroyed any lingering breast cancer cells that may have been there. We got to meet Dr. Stanislaw Burzynski on two occasions and will always hold him in high regard. He has dedicated his life to saving lives and has risked everything to continue doing his job because he cares about his patients more than he cares about his reputation. A man of honor in my opinion.
What next?
The next order of business is to get rid of the toxic levels of mercury, arsenic and lead I have in my system. I will go back to steaming everyday building up to two hours a day and taking chelation supplements to help eliminate them more quickly. I am hoping I can be rid of them within a couple of months. I go back to Bastyr next week to have my levels checked and will do so every three to four weeks until they are gone.
Then I will start on a protocol by the name of Protocel. It is listed as a "supplement" but was developed by a biochemist, Jim Sheridan, from this country many years ago. He, like Burzynski, ran into all kinds of obstacles from the FDA, Government and United States Postal Service. Jim Sheridan has as rich and interesting of a story as Burzynski. There are two very good things about the Protocel. One, it is inexpensive and two, there are NO side effects. If I never see side effects again it will be to soon.
As I am using the Protocel we will make our contacts with the people in India to try and have the nueroendrocine peptides manufactured there. It is likely we will make at least one trip to India. Nueroendrocine peptides would be number three on the list of attempts to ditch the cancer.
As you can see I/we continue to plan and be proactive. There isn't grass growing under our feet.
We as a family are doing well I think. Cole will start school in the fall and was lucky to be lotteried into the Spanish Emersion Program with Bellevue public schools. We couldn't be more thrilled. It is hard for Jeff and I to believe he is starting school this fall. Angie is thankfully still living with us and attending Bastyr.
Jeff and I hope each and everyone of you are finding joy and loving well.
My love,
Mary
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