“I am writing again with a very heavy heart.”
“What this all means is they will be working to prolong my life.”
“As sad and as frightened as I am, I must tell you that I am also relieved...to have an answer.”

Dear Family and Friends

I am writing again with a very heavy heart. We got the results back today and they are not good. The cancer is in my small bowel, liver, right shoulder (bone). There is a questionable spot in my left lymph node in the clavicle/neck area. The largest tumor is in or on my small bowel which leads the Doc to believe that that is the origin of the cancer.

I won't go into all the details tonight because I am tired and most of them don't matter much at this point. The next step is the doc wants to send me to MD Anderson in Houston to see Dr. Yao, one of the leading experts in the world. Matt (Oncologist) has already contacted them, faxed them a letter and spoken with Yao's PA. Matt's nurse will call me tomorrow with the info from MD Anderson. We will go and most likely have all the tests run again by them. A pain in the neck but also understandable. Dr Yao will take that info to his cancer board and they will decide IF/when they will do surgery. The IF is because they stop doing surgeries after 3-4 organs are involved because the body can't take it. What they are talking about in my case is uterus, bowel, liver, bone and lymph. They could easily say no! If they won't do surgery Matt wants me to come home and arrange for me to go to Switzerland for the radiotherapy by a man named Muellar. It may also be that I do both. The next step is to go to MD Anderson. If we can get an appt before we go to S. Africa we will do that. If not it will all be here when we get home.

What this all means is they will be working to prolong my life. That range is huge so there is hope. It spreads from months to decades. Obviously that isn't a pretty picture but we will do everything in our power to keep me healthy and ALIVE. My son needs his mommy and my husband needs his wife. My family and friends all want me around to.

As sad and as frightened as I am, I must tell you that I am also relieved. Relieved to have an answer as to what will happen next. Knowing something is better to me than waiting and not knowing. I may change my mind about that, but for now I am relieved.

Once again, I don't know what you can do for any of us other than pray, send white light etc. ETC.

My love to you all. Take your D.
Mary


This entry was posted on 11:44 PM and is filed under . You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.

0 comments: