“…I am going to Bastyr….”
“…we have to think outside the box.”
“I will keep investigating India.”
“Switzerland is not out of the picture but on the back burner. “
“…Matt said we have time to try one thing at a time.”
Hello Everyone,
We'll we went to see Matt Lonergan, oncologist, yesterday and have a tentative plan. Next week I am going to Bastyr to be detoxed. I don't know how long that will take but I imagine at least 2 weeks. Since traditional western medicine has nothing to offer me/us we have to think outside the box. We are going to try Dr. Burzynski in Houston. I say that with a caveat. I have recently gotten information on cancer treatment in India (thank you Nazir, I love you) and we are exploring what they have to offer. Yesterday Matt spoke very highly of Indian medicine and their ability to do what others won't. For now, we will plan on going back to Houston for peptide treatment with Burzynski, probably in Sept. That treatment protocol could last anywhere from 6 months to a yr. I will keep investigating India.
Switzerland is not out of the picture but on the back burner. They use radioisotopes that cause damage to kidneys and lungs. I would rather not put radioactive substances in my body if at all possible. If nothing else works I will do that but as Matt said we have time to try one thing at a time. For that I am VERY grateful.
Because we are thinking outside of the box insurance won't cover out of country or Burzynski. Is anyone surprised? Many friends have offered to do some fund raising events for us. You might imagine how tough that is for this Red-headed Irish woman! But I recognized we can't do this without help. I have to be around to watch my son grow into a man more than I need my ego or my pride. With that said you will all be hearing from friends, most likely through email, letting you know about these events. Forgive me, but I am passing along your email address so they can contact you. In the subject line they will use my name so if it goes into junk you will recognize it.
I am very glad to be home. Didn't like MD Anderson at all. The best thing that came out of it was we met a family from Dubai that was delightful. The dad studied at Seattle U years ago. They may come to Seattle before returning home. It would be fantastic to see them again.
My spirits are good and it is partially due to all of you for your encouragement to fight on. I am feeling pretty good physically to. I get tired easily or more easily than before all the surgeries but I make it through most days without napping. Jeff has also felt very encouraged by all of your support. He is also a fighter he just does it more quietly than me, or more graciously. Cole handled MD Anderson very well because Aunt Bobbie was there to play with him (thanks Bobbie) and he got to swim every day sometimes twice a day. When we landed back in Seattle while still on the plane he started singing "I wish I were back in Texas". He is a good little traveler.
We are leaving town this weekend for a family reunion with the Ibach's in Yakima. Going toward the sun.
My love to you all,
Mary
“…we have to think outside the box.”
“I will keep investigating India.”
“Switzerland is not out of the picture but on the back burner. “
“…Matt said we have time to try one thing at a time.”
Hello Everyone,
We'll we went to see Matt Lonergan, oncologist, yesterday and have a tentative plan. Next week I am going to Bastyr to be detoxed. I don't know how long that will take but I imagine at least 2 weeks. Since traditional western medicine has nothing to offer me/us we have to think outside the box. We are going to try Dr. Burzynski in Houston. I say that with a caveat. I have recently gotten information on cancer treatment in India (thank you Nazir, I love you) and we are exploring what they have to offer. Yesterday Matt spoke very highly of Indian medicine and their ability to do what others won't. For now, we will plan on going back to Houston for peptide treatment with Burzynski, probably in Sept. That treatment protocol could last anywhere from 6 months to a yr. I will keep investigating India.
Switzerland is not out of the picture but on the back burner. They use radioisotopes that cause damage to kidneys and lungs. I would rather not put radioactive substances in my body if at all possible. If nothing else works I will do that but as Matt said we have time to try one thing at a time. For that I am VERY grateful.
Because we are thinking outside of the box insurance won't cover out of country or Burzynski. Is anyone surprised? Many friends have offered to do some fund raising events for us. You might imagine how tough that is for this Red-headed Irish woman! But I recognized we can't do this without help. I have to be around to watch my son grow into a man more than I need my ego or my pride. With that said you will all be hearing from friends, most likely through email, letting you know about these events. Forgive me, but I am passing along your email address so they can contact you. In the subject line they will use my name so if it goes into junk you will recognize it.
I am very glad to be home. Didn't like MD Anderson at all. The best thing that came out of it was we met a family from Dubai that was delightful. The dad studied at Seattle U years ago. They may come to Seattle before returning home. It would be fantastic to see them again.
My spirits are good and it is partially due to all of you for your encouragement to fight on. I am feeling pretty good physically to. I get tired easily or more easily than before all the surgeries but I make it through most days without napping. Jeff has also felt very encouraged by all of your support. He is also a fighter he just does it more quietly than me, or more graciously. Cole handled MD Anderson very well because Aunt Bobbie was there to play with him (thanks Bobbie) and he got to swim every day sometimes twice a day. When we landed back in Seattle while still on the plane he started singing "I wish I were back in Texas". He is a good little traveler.
We are leaving town this weekend for a family reunion with the Ibach's in Yakima. Going toward the sun.
My love to you all,
Mary
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