“I have mercury & arsenic poisoning.”
“I…started treatment at The Burzynski Clinic on the 22nd.”
“I am taking antineoplastons = sodiumphenylbuterate (PB) and amino acids (A2-10). I take 6 PB's and 2 A2-10's 6 times a day every 2 hrs until the regimen of 6 is complete. “
“I cried when I dropped Lillian off at the airport.”
“Catherine has been a silent, watchful angel in a way that no one else could be.”
Hello Everyone,
Well, I meant to write an update before I left for Houston to start treatment and that didn't happen so I am going to catch you up from Houston. Steaming, taking all my supplements and going to my appts has been a full time job.
To the update, which some of you know about. I have mercury & arsenic poisoning. Yes.... Bastyr was having me steaming for detox and when they found the heavy metals added a boat load of supplements a day to try to eliminate as much as possible. One capsule I take 18 of a day. Gulp. I am taking 10 different supplements a day and several of them 3x's a day. I understand each of their purposes so I see them all as worthwhile. But it is a boat load. Then there was more bad news from the MRI of my brain. I have over 20 small holes in the white matter in my brain. Matt (Oncologist) says it isn't cancer. The spots on my liver weren't cancer to begin with either if you recall. He said it could be hypertension (don't have it), diabetes (don't have it), MS or Lupus. They will watch it. He did say high levels of mercury or arsenic could cause those holes. Obviously, it is important to do what I can to get rid of the mercury & arsenic.
I came to Houston on Sept 21st and started treatment at The Burzynski Clinic on the 22nd. I was told to be prepared to stay for 3 weeks. Several people were trading places to come and be with me so I wouldn't be alone. I was told today, after only a week on the meds that I can come home. HOORAH. I have handled the medicine well and all my tumor markers came back negative (which doesn't really mean much with carcinoid cancer) so they are discharging me. I am taking antineoplastons = sodiumphenylbuterate (PB) and amino acids (A2-10). I take 6 PB's and 2 A2-10's 6 times a day every 2 hrs until the regimen of 6 is complete. I don't even want to count how many pills I am taking a day but it is a ton and I am going to take every last one of them until they tell me to stop!
The fact that I get to come home 2 weeks early makes me VERY happy. I even started to work out again while here which has been a taste of heaven. Have managed 4 work outs and plan a 5th tomorrow. I am coming home on Weds. Lillian came down with me and I would say really went to great lengths to get on the same flight as me. She is a doc so I felt very taken care of those first few days here. She asked good questions to the docs at Burzynski and it made me feel protected to have her along. She also was the oomph I needed to start working out again. Lillian and Joe, Jeff and I are forever grateful. I cried when I dropped Lillian off at the airport. I hated to see her go.
Catherine came in the next day and has been with me since. She had a wonderful idea on Friday and said let's drive to New Orleans tomorrow. So we did. It was a great distraction and quite interesting. The city is still in its recovery stage and the damage clearly evident. Catherine's daughter was at Burzynski 12 years ago and it has been helpful to have her tell me Tami had that happen to. She recognizes the side effects and that is nice. Catherine has been a silent, watchful angel in a way that no one else could be. You all have seen Catherine's name by many times by now as she has been the one rallying the troops for the fundraising. Jeff and I couldn't even begin to find a way to say thank you Catherine if we tried. But we are going to try with our undying love! I get to fly home with Catherine on Weds (thanks to Sonja, HS).
I get to go home and see my boys!!!! Cole told his Aunt Stephanie while I was away that his mom was a very smart woman. Then waving a finger with a twinkle in his eye said "but I am smarter" as he proceeds to tell them about the times he has twicked (tricked) me. Unfortunately, some of those times really did happen. He is his father’s son! And I hope he is smarter than me.
If you haven't been able to tell I am excited to be coming home. The side effects have been minimal by comparison. I have had some dizziness and confusion. I am not going to complain about those small things. Well maybe to Jeff I will. Sorry babe.
I will have scans redone in 3 months and we will know from the results what to do next. Fight ON. Your love and support has been phenomenal and we hope to return it someday. For different reasons!
My love, my blessings,
“I…started treatment at The Burzynski Clinic on the 22nd.”
“I am taking antineoplastons = sodiumphenylbuterate (PB) and amino acids (A2-10). I take 6 PB's and 2 A2-10's 6 times a day every 2 hrs until the regimen of 6 is complete. “
“I cried when I dropped Lillian off at the airport.”
“Catherine has been a silent, watchful angel in a way that no one else could be.”
Hello Everyone,
Well, I meant to write an update before I left for Houston to start treatment and that didn't happen so I am going to catch you up from Houston. Steaming, taking all my supplements and going to my appts has been a full time job.
To the update, which some of you know about. I have mercury & arsenic poisoning. Yes.... Bastyr was having me steaming for detox and when they found the heavy metals added a boat load of supplements a day to try to eliminate as much as possible. One capsule I take 18 of a day. Gulp. I am taking 10 different supplements a day and several of them 3x's a day. I understand each of their purposes so I see them all as worthwhile. But it is a boat load. Then there was more bad news from the MRI of my brain. I have over 20 small holes in the white matter in my brain. Matt (Oncologist) says it isn't cancer. The spots on my liver weren't cancer to begin with either if you recall. He said it could be hypertension (don't have it), diabetes (don't have it), MS or Lupus. They will watch it. He did say high levels of mercury or arsenic could cause those holes. Obviously, it is important to do what I can to get rid of the mercury & arsenic.
I came to Houston on Sept 21st and started treatment at The Burzynski Clinic on the 22nd. I was told to be prepared to stay for 3 weeks. Several people were trading places to come and be with me so I wouldn't be alone. I was told today, after only a week on the meds that I can come home. HOORAH. I have handled the medicine well and all my tumor markers came back negative (which doesn't really mean much with carcinoid cancer) so they are discharging me. I am taking antineoplastons = sodiumphenylbuterate (PB) and amino acids (A2-10). I take 6 PB's and 2 A2-10's 6 times a day every 2 hrs until the regimen of 6 is complete. I don't even want to count how many pills I am taking a day but it is a ton and I am going to take every last one of them until they tell me to stop!
The fact that I get to come home 2 weeks early makes me VERY happy. I even started to work out again while here which has been a taste of heaven. Have managed 4 work outs and plan a 5th tomorrow. I am coming home on Weds. Lillian came down with me and I would say really went to great lengths to get on the same flight as me. She is a doc so I felt very taken care of those first few days here. She asked good questions to the docs at Burzynski and it made me feel protected to have her along. She also was the oomph I needed to start working out again. Lillian and Joe, Jeff and I are forever grateful. I cried when I dropped Lillian off at the airport. I hated to see her go.
Catherine came in the next day and has been with me since. She had a wonderful idea on Friday and said let's drive to New Orleans tomorrow. So we did. It was a great distraction and quite interesting. The city is still in its recovery stage and the damage clearly evident. Catherine's daughter was at Burzynski 12 years ago and it has been helpful to have her tell me Tami had that happen to. She recognizes the side effects and that is nice. Catherine has been a silent, watchful angel in a way that no one else could be. You all have seen Catherine's name by many times by now as she has been the one rallying the troops for the fundraising. Jeff and I couldn't even begin to find a way to say thank you Catherine if we tried. But we are going to try with our undying love! I get to fly home with Catherine on Weds (thanks to Sonja, HS).
I get to go home and see my boys!!!! Cole told his Aunt Stephanie while I was away that his mom was a very smart woman. Then waving a finger with a twinkle in his eye said "but I am smarter" as he proceeds to tell them about the times he has twicked (tricked) me. Unfortunately, some of those times really did happen. He is his father’s son! And I hope he is smarter than me.
If you haven't been able to tell I am excited to be coming home. The side effects have been minimal by comparison. I have had some dizziness and confusion. I am not going to complain about those small things. Well maybe to Jeff I will. Sorry babe.
I will have scans redone in 3 months and we will know from the results what to do next. Fight ON. Your love and support has been phenomenal and we hope to return it someday. For different reasons!
My love, my blessings,
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