“She is not eligible for any clinical trials at MD Anderson.”
“…considering peptide treatments from the Burzynski Institute in Houston.”
“…peptides help heal the cells at a cellular level…
“…replacing peptides…promotes healing and at the same time reenergizes the body’s own system.”

Mary's testing and appointments at MD Anderson were completed as of last night. What we have learned this week….

1. Additional carcinoid tumors on Mary's liver were discovered, more than 5. One out of the two original carcinoid tumors on the liver has increased in size by .5 mm since May of this year. Dr. Yao considers the disease to be stabilized, meaning it hasn't grown more than 20%.

2. Dr. Yao classified Mary's carcinoid cancer as being stage 4 and has recommended Octreotide / Somatostatin radiation treatments starting next week. He did not recommend any further surgeries. She is not eligible for any clinical trials at MD Anderson.

3. Mary is considering peptide treatments from the Burzynski Institute in Houston. Unlike radiation which masks both good and bad cells, peptides help heal the cells at a cellular level by a process called mylanation. When the body is sick peptides become depleted, by replacing peptides into the system it promotes healing and at the same time reenergizes the body’s own system. Peptides are part of an approved regimen of what is being used to treat Carcinoid patients in other parts of the world. They are being used in clinical trials in this country.

It is also possible that one of or both of the treatment options above will be utilized. We are looking forward to being home Monday where and when we will continue to live, love and enjoy family and friends every day, every month, and every year. Thank you to you all again for your kind words of encouragement, your thoughts and your prayers during what is a challenging time.

We have an appt with Dr. Lonergan (Matt) on Thurs next week. We will go over the treatment options, including Switzerland with him and then decide what to proceed with first. Our strong leanings are to start at The Burzynski Institute.

From all of us...


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